"Can I… get married?" by Hiroko Yamamoto
Introduction
I had a call from Aya's mother one Wednesday afternoon in late September. It was around the time of day when the outpatients waiting to be examined and those who were undergoing an examination were all beginning to get a little tired of having to spend such a long time in the hospital. She told me she was preparing to publish Aya's diary, wich had been written over a long period. She wanted to ask me, as her doctor, about the disease Aya had suffered from and also about my association with her.
While advising Aya to keep her notes in a diary and organize them into a book, I was concerned about the fact that there wasn't much I could do to help her. So I was relieved and very pleased to hear that publication was getting under way. Aya is no longer able to get up by herself and is now bedridden. She has to rely on someone to help her eat and do everything for her.
Her mother said she wanted to complete the book as quickly as possible for the sake of such a daughter. I felt a lump in my throat when I heard her mother's way of talking. I granted her request. At the same time, I thought that looking back would be a good chance for me to put everything together; my encounter with Aya was also deeply connected with my own growth as a doctor.
You may find what I have to say about Aya's incurable disease - spinocerebellar degeneration - a little difficult to follow. But I hope you will read it carefully because it is important to understand her way of live.
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